We are especially grateful to the organisations partnering with us financially to fund the Priority Setting Partnership. You can also help by printing off the following poster and displaying it, such as at your local support group.


When you’re faced with a wall of information, it’s easy to feel overwhelmed. brainstrust empowers brain tumour patients and carers to be engaged in their care so that they can take control and be confident that they are working towards the best possible outcome for their situation.

Visit brainstrust Website

The Brain Tumour Charity

The Brain Tumour Charity is the UK’s largest dedicated brain tumour charity, committed to fighting brain tumours on all fronts. We fund scientific and clinical research into brain tumours and offer support and information to those affected, whilst raising awareness and influencing policy.

Visit The Brain Tumour Charity Website

Brain Tumour Research

Brain Tumour Research represents the united campaign voice of the Brain Tumour Research group of charities. Established in 2008, the charity Brain Tumour Research was launched specifically to raise substantial funds for brain tumour research and operates as a separate entity to the member charities.

Visit Brain Tumor Research Website

Children with Cancer UK

Children with Cancer UK is the leading national children's charity dedicated to the fight against all childhood cancers. THEIR aims are to determine the causes, find cures and provide care for children with cancer.

Visit Children with Cancer UK

Cochrane Collaboration Neuro-Oncology Group

The development of neuro-oncology reviews has been necessitated by the improving quality of evidence based neuro-oncology research and treatment and a plethora of new reviews published on the Cochrane Library.

Visit Cochrane Collaboration Neuro-Oncology Group

Lothian Health - Edinburgh Centre for Neuro-Oncology

The Edinburgh Centre for Neuro-Oncology (ECNO) is based within the Western General Hospital, Edinburgh. ECNO provides a base for administrative and clinical integration of staff from Neurology, Neurosurgery and Oncology who have a special interest in Neuro-Oncology and who are involved in the joint Neuro-Oncology clinic or Neuro-Oncology Research within Edinburgh.

Visit Lothian Health - Edinburgh Centre for Neuro-Oncology

James Lind Alliance (JLA)

The James Lind Alliance (JLA) is a non-profit making initiative, which was established in 2004. It brings patients, carers and clinicians together to identify and prioritise the top 10 uncertainties, or 'unanswered questions', about the effects of treatments that they agree are most important.

Visit JLA

Edinburgh and Lothians Health Foundation

The Edinburgh and Lothians Health Foundation aims to improve the physical and mental health of the people of Scotland, in particular in Edinburgh and the Lothians. It provides funding and makes grants to support projects for improving the welfare of patients and their carers, promoting research and innovation, enhancing the NHS, contributing to arts and heritage and developing NHS staff through education and training.

You can also help by printing off the following poster and displaying it, such as at your local support group. To receive free copies of the poster, postcards or the survey, please contact Julia at 0131 537 2875 or